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The RAISE Family Caregiver Resource and Dissemination Center

Council Meeting Materials and Resources

The RAISE Family Caregiving Advisory Council meets regularly to develop a national family caregiving strategy that states, communities, providers, and others can use to recognize and support family caregivers. Below are council materials and resources.

Blog: Supporting Family and Older Relative Caregivers: The Family Caregiving Advisory Council Marks One Year of Progress, September 2020 On Sept. 2, 2020, the U.S. Administration for Community Living (ACL) published this blog describing the first year of activities of the Recognize, Assist, Include, Support, and Engage (RAISE) Act Family Caregiving Advisory Council. In its first year, the council held five public meetings, conducted a federal inventory of current programs and initiatives that could support family caregivers, identified opportunities to collaborate further and streamline efforts, and sought and documented input from caregivers, stakeholders, and others as part of the council’s work of writing a report to Congress and developing a National Caregiving Strategy. Read the blog.

August 2020 Meeting: The Family Caregiving Advisory Council met for the fifth time in mid-August to hear expert presentations on the parallels between recommendations issued by the National Alzheimer’s Project Act (NAPA) Advisory Council and the council’s own work to make recommendations to Congress to better support family caregivers. The council is established by the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act. Read a NASHP report on the meeting and view a video recording of the meeting and presentation slides, and learn more.

July 2020 Meeting: The Administration for Community Living (ACL) convened the Family Caregiving Advisory Council, established by the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act, for its fourth council meeting. Read NASHP’s report on the meeting, the agenda, and the presentation slides. Learn more about the council’s work at the ACL’s RAISE Family Caregiving Advisory Council’s webpage.

June 2020: Center for Medicare Advocacy Publishes Report, Medicare and Family Caregivers
The Center for Medicare Advocacy has written an issue brief, Medicare and Family Caregivers, as part of collaborative work to advance the RAISE Family Caregivers Act, Public Law 115-119. The RAISE Act directs the Department of Health and Human Services to develop and maintain a national family caregiver strategy that identifies actions and support for family caregivers in the United States. The center’s report explores the role Medicare does, and could, play in supporting older and disabled beneficiaries and their caregivers. The brief was written with support from The John A. Hartford Foundation.” The Medicare and Family Caregivers Issue Brief is available here.

May 2020 Meeting: The Administration for Community Living (ACL) held its third meeting of the Family Caregiving Advisory Council, established by the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act. Read a NASHP report about the meeting. The meeting (view agenda) occurred over two days, May 20 and 21, 2020. Read the minutes for May 20  and May 21 and watch the two afternoons of virtual meetings here. Learn more about the council’s work at this ACL webpage.

February 2020 Meeting: The Administration for Community Living (ACL) held its second meeting of the Family Caregiving Advisory Council, established by the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act, in February, read a NASHP report about the meeting. The meeting (view agenda) occurred over two days, Feb. 11 and 12, 2020. Read the Feb. 11 minutes and watch that day’s virtual meeting here and read the Feb. 12 minutes and watch that day’s Feb. 12 meeting here.  Learn more about the council’s work at this ACL webpage.

Inventory of Key Family Caregiving Recommendations, April 2020. To assist the RAISE Act Family Caregiving Advisory Council make its recommendations, NASHP collected and analyzed about 800 recommendations from 27 key family caregiving reports written in the past decade. NASHP synthesized and inventoried the recommendations in this resource, with support from The John A. Hartford Foundation and in collaboration with the US Administration for Community Living. Learn more.

NASHP Awards RAISE Listening Session Contract, March 2020: NASHP, with support from The John A. Hartford Foundation, has awarded a contract to conduct caregiving listening sessions to Community Catalyst, in conjunction with LeadingAge LTSS Center @ UMass Boston and ET Consulting, LLC. The partners will analyze public input on family caregiving needs and conduct listening sessions for the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregiving Advisory Council. Learn more.

February 2020 Meeting: The council convened its second meeting and developed guiding principles and goals to help it begin to propose a national strategy. Read a report and learn more about the council’s work here.

August 2019 Meeting: The council convened for its first meeting and members shared their guiding values and principles. Read the Family Caregiving Advisory Council Meeting Report for a comprehensive description of the meeting. Review the agenda for the day, which includes the PowerPoint presentations used by presenters during the meeting, and watch the full video of the council’s kick-off meeting.

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