State health policy leaders see enormous value in palliative care to promote good outcomes and avoid costly and unnecessary and often unwanted treatments for the seriously ill. As states weigh how to maintain and provide services in the face of lower revenue and increased demand due to COVID-19, palliative care may be an important – and underutilized – resource. NASHP research found striking examples of palliative care implementation, but also significant untapped opportunities for states to improve palliative care access and quality. This continuously expanding resource, created with generous support from The John A. Hartford Foundation, provides concrete resources for states working to implement and expand high-quality palliative care.
The Family Caregiving Advisory Council
The impact of the nation’s aging population on state budgets and policies cannot be addressed without understanding the needs of family caregivers. Under the RAISE Act, the Secretary of the Department of Health and Human Services must develop a national Family Caregiving Strategy that recommends actions that different stakeholders can take to support family caregivers and meets their diverse needs. The RAISE Act also requires the secretary to convene a Family Caregiving Advisory Council to help inform and shape the strategy by providing recommendations to the secretary.
The council is charged with preparing a report for the secretary that includes effective models of family caregiving and support to family caregivers, as well as opportunities to improve coordination across federal government programs. The secretary will incorporate the council’s report in the strategy, in addition to identifying best practices and other information to support family caregivers. The RAISE Act requires the council to be made up of to 15 voting members who reflect the diversity of family caregivers and care recipients, as well as non-voting representatives from federal departments and agencies who play a role in this issue.
Council Meeting Materials and Resources
In August 2019, the council convened for its first meeting and members shared their guiding values and principles. Read the Family Caregiving Advisory Council Meeting Report for a comprehensive description of the meeting. Review the agenda for the day, which includes the PowerPoint presentations used by presenters during the meeting, and watch the full video of the council’s kick-off meeting.
State Policy Innovations to Support Family Caregivers: States are developing new initiatives to support family caregivers, who provide nearly $470 billion in unpaid health care support and services each year to relatives, friends, and neighbors. Passage of the federal Recognize, Assist, Include, Support, and Engage Family Caregivers (RAISE) Act underscores the urgent attention this issue requires. This blog, State Policy Innovations to Support Family Caregivers, written with support from The John A. Hartford Foundation, explores Hawaii, Washington, and Minnesota’s innovative efforts to assist family caregivers.
Laura Gitlin, PhD
Dean, College of Nursing and Health Professions
Kathleen Kelly, MPA
Family Caregiver Alliance
Assistant Commissioner and Chief
TennCare Long-Term Services and Supports
Chief Executive Officer
Division of Vocational Rehabilitation
Alaska Department of Labor and Workforce Development
National Managing Coordinator
Diverse Elders Coalition
Susan Reinhard, RN, PhD, FAAN
Senior Vice President and Director
AARP Public Policy Institute
David Reuben, MD
Director, Multi-campus Program in Geriatrics Medicine and Gerontology
Chief, Division of Geriatrics,
University of California, Los Angeles
North Carolina Medicaid
North Carolina Department of Health and Human Services
National Association of State Directors of Developmental Disabilities Services
C. Grace Whiting, JD
President and CEO
National Alliance for Caregiving
Jennifer Wolff, PhD
Eugene and Mildred Lipitz Professor and Director
Roger C. Lipitz Center for Integrated Health Care
Johns Hopkins University
For more information, contact Eliza Mette.
Governors can control costs, advance their priorities, and enhance lives by improving the social and economic conditions that make up 80 percent of the factors affecting their residents’ health. Governors are uniquely positioned to maximize state resources to address the conditions affecting health by leading cross-agency and public-private collaborations, leveraging siloed state resources, and advancing evidence-based health policy approaches.
State policymakers are uniquely positioned to impact access, quality, and costs of care for high-need, high-cost populations. Many of these individuals have serious illnesses such as cancer, emphysema, and dementia.
A patient with chronic obstructive pulmonary disease who was a frequent emergency room (ER) visitor now has a plan to manage his symptoms and now avoids the ER. A family caring for a parent with Alzheimer’s was considering nursing home placement, but after learning how to address challenging behavioral symptoms now feels equipped to continue […]
Palliative care has been shown to decrease costs for those with serious illness, however many states struggle with how to expand access to this service and ensure quality.
NASHP is pleased to announce the 10 states selected to attend the State Policymakers Palliative Care Summit, supported by a grant from The John A. Hartford Foundation. Policymakers, including legislators as well as Medicaid and public health officials from Arizona, Colorado, Hawaii, Kentucky, Massachusetts, Minnesota, Ohio, Oklahoma, Pennsylvania, and Texas, will participate in the day-long […]
NASHP has been awarded a three-year grant from The John A. Hartford Foundation to develop a comprehensive resource and dissemination center on family caregiving. The grant will fund NASHP’s RAISE Act Family Caregiver Resource and Dissemination Center, a national focal point for resources, technical assistance, and policy analysis for states and the broader community of […]
The Palliative Care State Policymaker Summit, on Tuesday, Aug. 20, 2019, in Chicago, will bring together teams of state officials from up to 10 states for information sharing, discussion, and problem solving related to palliative care policies and programs. After the summit, state officials will receive ongoing support from NASHP staff and have access to a faculty of national […]