- Why Palliative Care Is Important for States
State Strategies to Build and Support Palliative Care
Our Palliative Care e-newsletter
State health policy leaders see enormous value in palliative care to promote good outcomes and avoid costly and unnecessary and often unwanted treatments for the seriously ill. As states weigh how to maintain and provide services in the face of lower revenue and increased demand due to COVID-19, palliative care may be an important – and underutilized – resource. NASHP research found striking examples of palliative care implementation, but also significant untapped opportunities for states to improve palliative care access and quality. This continuously expanding resource, created with generous support from The John A. Hartford Foundation, provides concrete resources for states working to implement and expand high-quality palliative care.
The Family Caregiving Advisory Council
The impact of the nation’s aging population on state budgets and policies cannot be addressed without understanding the needs of family caregivers. Under the RAISE Act, the Secretary of the Department of Health and Human Services must develop a national Family Caregiving Strategy that recommends actions that different stakeholders can take to support family caregivers and meets their diverse needs. The RAISE Act also requires the secretary to convene a Family Caregiving Advisory Council to help inform and shape the strategy by providing recommendations to the secretary.
The council is charged with preparing a report for the secretary that includes effective models of family caregiving and support to family caregivers, as well as opportunities to improve coordination across federal government programs. The secretary will incorporate the council’s report in the strategy, in addition to identifying best practices and other information to support family caregivers. The RAISE Act requires the council to be made up of to 15 voting members who reflect the diversity of family caregivers and care recipients, as well as non-voting representatives from federal departments and agencies who play a role in this issue.
Council Meeting Materials and Resources
In August 2019, the council convened for its first meeting and members shared their guiding values and principles. Read the Family Caregiving Advisory Council Meeting Report for a comprehensive description of the meeting. Review the agenda for the day, which includes the PowerPoint presentations used by presenters during the meeting, and watch the full video of the council’s kick-off meeting.
State Resources
State Policy Innovations to Support Family Caregivers: States are developing new initiatives to support family caregivers, who provide nearly $470 billion in unpaid health care support and services each year to relatives, friends, and neighbors. Passage of the federal Recognize, Assist, Include, Support, and Engage Family Caregivers (RAISE) Act underscores the urgent attention this issue requires. This blog, State Policy Innovations to Support Family Caregivers, written with support from The John A. Hartford Foundation, explores Hawaii, Washington, and Minnesota’s innovative efforts to assist family caregivers.
Faculty
Laura Gitlin, PhD
Dean, College of Nursing and Health Professions
Drexel University
Kathleen Kelly, MPA
Executive Director
Family Caregiver Alliance
Patti Killingsworth
Assistant Commissioner and Chief
TennCare Long-Term Services and Supports
Sandy Markwood
Chief Executive Officer
N4A
Duane Mayes
Director
Division of Vocational Rehabilitation
Alaska Department of Labor and Workforce Development
Jenna McDavid
National Managing Coordinator
Diverse Elders Coalition
Susan Reinhard, RN, PhD, FAAN
Senior Vice President and Director
AARP Public Policy Institute
David Reuben, MD
Director, Multi-campus Program in Geriatrics Medicine and Gerontology
Chief, Division of Geriatrics,
University of California, Los Angeles
Dave Richard
Deputy Secretary
North Carolina Medicaid
North Carolina Department of Health and Human Services
Mary Sowers
Executive Director
National Association of State Directors of Developmental Disabilities Services
C. Grace Whiting, JD
President and CEO
National Alliance for Caregiving
Jennifer Wolff, PhD
Eugene and Mildred Lipitz Professor and Director
Roger C. Lipitz Center for Integrated Health Care
Johns Hopkins University
For more information, contact Eliza Mette.
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State Approaches to Family Caregiver Education, Training and Counseling in Medicaid Home- and Community-Based Services
/in Policy Charts, Featured News Home, Maps Chronic and Complex Populations, Chronic Disease Prevention and Management, Health Coverage and Access, Palliative Care, Population Health, State Resources, The RAISE Family Caregiver Resource and Dissemination Center, Workforce Capacity /by Salom TeshaleToolkit: Upstream Health Priorities for Governors
/in Policy Toolkits Behavioral/Mental Health and SUD, Chronic and Complex Populations, Community Health Workers, Cost, Payment, and Delivery Reform, Eligibility and Enrollment, Featured Policy Home, Health Coverage and Access, Health Equity, Health System Costs, Healthy Child Development, Housing and Health, Long-Term Care, Maternal, Child, and Adolescent Health, Medicaid Expansion, Medicaid Managed Care, Medicaid Managed Care, Medicaid Managed Care, Medicaid Managed Care, Palliative Care, Population Health, Quality and Measurement, Social Determinants of Health, Value-Based Purchasing, Workforce Capacity /by NASHP WritersGovernors can control costs, advance their priorities, and enhance lives by improving the social and economic conditions that make up 80 percent of the factors affecting their residents’ health. Governors are uniquely positioned to maximize state resources to address the conditions affecting health by leading cross-agency and public-private collaborations, leveraging siloed state resources, and advancing evidence-based health policy approaches.
Webinar: State Strategies to Expand Access to Palliative Care
/in Palliative Care Webinars Chronic and Complex Populations, Palliative Care /by NASHP StaffState policymakers are uniquely positioned to impact access, quality, and costs of care for high-need, high-cost populations. Many of these individuals have serious illnesses such as cancer, emphysema, and dementia.
Seven Ways State Policymakers Can Promote Palliative Care
/in Policy Blogs, Featured News Home Care Coordination, Chronic and Complex Populations, Cost, Payment, and Delivery Reform, Eligibility and Enrollment, Health Coverage and Access, Health System Costs, Medicaid Managed Care, Palliative Care, Physical and Behavioral Health Integration, Primary Care/Patient-Centered/Health Home, Quality and Measurement, Workforce Capacity /by Kitty PuringtonA patient with chronic obstructive pulmonary disease who was a frequent emergency room (ER) visitor now has a plan to manage his symptoms and now avoids the ER. A family caring for a parent with Alzheimer’s was considering nursing home placement, but after learning how to address challenging behavioral symptoms now feels equipped to continue […]
Webinar: Utilizing Quality Measures to Build an Effective Palliative Care System
/in Palliative Care Webinars Palliative Care /by NASHP StaffPalliative care has been shown to decrease costs for those with serious illness, however many states struggle with how to expand access to this service and ensure quality.
Ten States Selected to Attend Palliative Care Summit in Chicago
/in Policy Arizona, Colorado, Hawaii, Kentucky, Massachusetts, Minnesota, Ohio, Oklahoma, Pennsylvania, Texas Blogs, Featured News Home Care Coordination, Chronic and Complex Populations, Chronic Disease Prevention and Management, Cost, Payment, and Delivery Reform, Health Coverage and Access, Long-Term Care, Medicaid Managed Care, Medicaid Managed Care, Palliative Care, Physical and Behavioral Health Integration, Population Health, Primary Care/Patient-Centered/Health Home, Quality and Measurement /by NASHP WritersNASHP is pleased to announce the 10 states selected to attend the State Policymakers Palliative Care Summit, supported by a grant from The John A. Hartford Foundation. Policymakers, including legislators as well as Medicaid and public health officials from Arizona, Colorado, Hawaii, Kentucky, Massachusetts, Minnesota, Ohio, Oklahoma, Pennsylvania, and Texas, will participate in the day-long […]
NASHP Awarded New Grant on Family Caregiving from The John A Hartford Foundation
/in Policy Blogs Care Coordination, Chronic and Complex Populations, Chronic Disease Prevention and Management, Community Health Workers, Cost, Payment, and Delivery Reform, Council Meeting Materials and Resources, Housing and Health, Long-Term Care, Medicaid Managed Care, Medicaid Managed Care, Palliative Care, Population Health, Primary Care/Patient-Centered/Health Home, Quality and Measurement, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP WritersNASHP has been awarded a three-year grant from The John A. Hartford Foundation to develop a comprehensive resource and dissemination center on family caregiving. The grant will fund NASHP’s RAISE Act Family Caregiver Resource and Dissemination Center, a national focal point for resources, technical assistance, and policy analysis for states and the broader community of […]
Palliative Care: A Primer for State Policymakers
/in Policy Reports Care Coordination, Chronic and Complex Populations, Chronic Disease Prevention and Management, Community Health Workers, Cost, Payment, and Delivery Reform, Health Coverage and Access, Health System Costs, Long-Term Care, Medicaid Managed Care, Palliative Care, Physical and Behavioral Health Integration, Population Health, Primary Care/Patient-Centered/Health Home, Workforce Capacity /by Lyndsay Sanborn and Kitty PuringtonPalliative Care State Policymaker Summit Request for Applications
/in Policy Blogs Care Coordination, Chronic and Complex Populations, Cost, Payment, and Delivery Reform, Health System Costs, Palliative Care, Physical and Behavioral Health Integration, Primary Care/Patient-Centered/Health Home /by Lyndsay SanbornThe Palliative Care State Policymaker Summit, on Tuesday, Aug. 20, 2019, in Chicago, will bring together teams of state officials from up to 10 states for information sharing, discussion, and problem solving related to palliative care policies and programs. After the summit, state officials will receive ongoing support from NASHP staff and have access to a faculty of national […]